Do you have Primary ciliary dyskinesia (PCD) or look after someone with it? Would you like to meet other families living with PCD and learn more about the condition? If so, join the PCD Family Support Group on Saturday 28 April 2018, 10:00am-3:30pm at Eureka! Children’s Museum.
Primary ciliary dyskinesia (PCD) is a rare inherited condition that is caused by abnormal cilia. Cilia are microscopic hair-like structures that beat in the airway clearing mucus and debris.
In those with PCD, cilia are either static or do not beat in a coordinated fashion (dyskinetic) meaning the body is unable to clear secretions. This can affect the lungs, nose, sinuses, ears and fertility.
The aim of the day is to learn more about PCD and meet other families to share experiences. Attendees will get access to Eureka children’s museum and we will be running age appropriate educational sessions in the human body section of the museum.
Talks will also be given by physiotherapists and PCD experts.
A buffet will be provided for adults and a packed lunch for children attending the event, and plenty of tea and coffee will be available.
The event is FREE but please register at Eventbrite.